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We invite you to engage in an interactive nintely minute roundtable led by EverythingALS consortia of Pharma partners, sensor companies, neurologists, data scientists, regulators and patients to help advance the discovery and implementation of ALS digital biomarkers in clinical trials through our collaborative efforts.

 

Joining our participatory roundtable, you will be the first to learn about our latest study results on ALS digital biomarkers as well as have the opportunity to hear why major pharmaceutical companies have joined the consortium to partner in EverythingALS research, which will be expanded to include analyzing data from wearables and smartphones.

  

As always, we approach each roundtable to encourage out-of-the-box thinking, and to kick it off, we have an exciting agenda! Take a look below.         

Access to this event is by invitation only.

Hosts & Speakers 

    Agenda

    Monday, June 29, 2026

    12:00 - 1:30 PM ET   I   9:00 AM - 10:30 PT

    Welcome, Agenda Overview and Announcements/Reminders

    Indu Navar, CEO & Founder, EverythingALS and Dr. James Berry

    Keynote from Ed Rapp

    Despite the daily challenges of ALS, Ed Rapp remains deeply engaged in advancing research, supporting innovation, and cherishing time with family. His leadership and resilience continue to motivate the ALS community and those working toward a cure.

    Data Science Research updates. 

    Advancing Clinical Endpoints: Gait and Balance

    Julian Peller, Lead of Data Science & AI Development 

    SAVA AI Release and Use by physicians, patients and sponsors

    Multi-lingual Clinical Trial AI Assistant for all the stakeholders 

    Dr. Lyle Ostrow, Temple University

    Dr. Jinsy Andrews, NYU, NEALS

    Dr. Eduardo Locatelli, NSU 

    Vision 2030 Update 

    • Collaboration with Allen Brain Institute

    • NIH NINDS

    END OPEN SESSION

    • Focus on 2026 OKRs & updates on the key tracks from last Roundtable

    • Listener Effort Regulatory Update 

    • Onsite Summit 2026 - July 26th and 27th in Boston 

    CONSORTIA MEMBERS Only

    1:00-1:30 PM ET

    Agenda

    Participants

     

    © 2025 by EverythingALS

    EverythingALS is part of Peter Cohen Foundation, a non-profit 501(c)(3), United States. EIN 84-3055901 

    Email: info@everythingals.org

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