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We invite you to engage in an interactive nintely minute roundtable led by EverythingALS consortia of Pharma partners, sensor companies, neurologists, data scientists, regulators and patients to help advance the discovery and implementation of ALS digital biomarkers in clinical trials through our collaborative efforts.

 

Joining our participatory roundtable, you will be the first to learn about our latest study results on ALS digital biomarkers as well as have the opportunity to hear why major pharmaceutical companies have joined the consortium to partner in EverythingALS research, which will be expanded to include analyzing data from wearables and smartphones.

  

As always, we approach each roundtable to encourage out-of-the-box thinking, and to kick it off, we have an exciting agenda! Take a look below.         

This is an invite only event.

Hosts & Speakers 

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    Agenda

    Monday March 4th, 2024

         12:30 PM - 2 PM ET   I   9:30 AM - 11:00 AM PT

    5 minutes

    15 minutes

    15 minutes

    15 minutes

    30 minutes

    Welcome and Consortia Updates

    Indu Navar 

    Keynote : Person living with ALS

    Martha and Paul Beach will share with us the impact of ALS on family, and support and shared-decisions

    Grant Opportunities with the ALS Research Programs 

    Sarah N. Fontaine

    Will present the congressionally directed medical research programs, U.S. Army Medical Research and Development Command 

    EverythingALS Vision 2030 AI Research Hub

    Merit Cudkowicz and Ernest Fraenkel

    Vision: 2030:  a First-of-its-Kind AI Research Hub in ALS

    Panel: 'What It Takes'

    Michelle Crouthamel, Lyle Ostrow, Ernest Fraenkel, David Shulman and Sarah N. Fontaine

    "What It Takes": Making Digital Endpoints and Outcomes Foundational to Powered Studies in 2024 - Perspectives from Researchers, Clinicians, Industry and People with ALS

    Agenda

    Friday December 13th, 2024

         12:00 NOON - 1:30 PM ET   I   9:00 AM - 10:30 AM PT

    Welcome, Updates, and Announcements

    Welcoming new consortia members.

    Indu Navar

    Founder & CEO, EverythingALS

    Comments from the new Consortia members

     

    EverythingALS Progress Updates

    ​​EverythingALS App, Research, Studies, and Trials.

    Sensor Lab

    Updates and Next Steps

    EverythingALS team and Consortia

    Closing Remarks 

    Indu Navar, Founder & CEO, EverythingALS

    THANK YOU - END OPEN SESSION

    CONSORTIA MEMBERS' BREAKOUT

    12:55 - 1:30 PM ET

    Keynote from person with ALS (pALS)

    Curiosity, Collaboration, and Dedication: A Personal Story​​

     

    Siddu (Sridhar) Tummala,

    CEO, Cresido Analytics | Enterprise Data Solutions

    10 minutes

    05 minutes

    10 minutes

    30 minutes

    40 minutes

    05 minutes

    Agenda

    Participants

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