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Access to this event is by invitation only.
We invite you to engage in an interactive nintely minute roundtable led by EverythingALS consortia of Pharma partners, sensor companies, neurologists, data scientists, regulators and patients to help advance the discovery and implementation of ALS digital biomarkers in clinical trials through our collaborative efforts.
Joining our participatory roundtable, you will be the first to learn about our latest study results on ALS digital biomarkers as well as have the opportunity to hear why major pharmaceutical companies have joined the consortium to partner in EverythingALS research, which will be expanded to include analyzing data from wearables and smartphones.
As always, we approach each roundtable to encourage out-of-the-box thinking, and to kick it off, we have an exciting agenda! Take a look below.
Hosts & Speakers
Agenda
Tuesday, March 17, 2026
2:00 - 3:30 PM ET I 11:00 AM - 12:30 PT
Welcome, Agenda Overview and Announcements/Reminders
Indu Navar, CEO & Founder, EverythingALS and Dr. James Berry
Keynote from Joe Redmond
Award-winning advocate, country music producer, writer and, entrepreneur Joe Redmond shares his ALS journey, and the power of giving back
Publication and research updates
Dr. James Berry, Chief, Division of ALS and MND, Mass General Brigham
Digital Endpoint and Clinically Meaningful Measures : Datascience Update
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Speech - advances in Listener Effort
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Gait and balance
Julian Peller, Director of Data Science & AI Development
Oren Levy, MD, Medical Director, Early Clinical Development, Regeneron
2025 Impact Report. Multi-Agentic AI framework for ALS. Vision 2030
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SAVA.AI: trial matching updates (to be released in April 2026)
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Expert Talk AI: personalized and conversational education agent with Dr. Lyle Ostrow, Temple University
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Cognition Exam AI co-pilot: ECAS cognitive assessments with AI assistance
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Vision 2030: restoration and regeneration research update from Dr. Ernest Fraenkel, MIT
END OPEN SESSION
CONSORTIA MEMBERS Only
3:00-3:30 PM ET
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Focus on 2026 OKRs & updates on the key tracks from last Roundtable
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Multi-lingual Speech and Listener Effort
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Spanish App demo, experience and feedback shared from Lauren Tabor Gray, PhD, CCC-SLP, Co-Director, Cathy J. Husman ALS Center, Assistant Professor, Kiran C. Patel Collegeof Allopathic Medicine, Nova Southeastern University (NSU)
