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We invite you to engage in an interactive nintely minute roundtable led by EverythingALS consortia of Pharma partners, sensor companies, neurologists, data scientists, regulators and patients to help advance the discovery and implementation of ALS digital biomarkers in clinical trials through our collaborative efforts.

 

Joining our participatory roundtable, you will be the first to learn about our latest study results on ALS digital biomarkers as well as have the opportunity to hear why major pharmaceutical companies have joined the consortium to partner in EverythingALS research, which will be expanded to include analyzing data from wearables and smartphones.

  

As always, we approach each roundtable to encourage out-of-the-box thinking, and to kick it off, we have an exciting agenda! Take a look below.         

This is an invite only event.

Hosts & Speakers 

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    Agenda

    Monday March 4th, 2024

         12:30 PM - 2 PM ET   I   9:30 AM - 11:00 AM PT

    5 minutes

    15 minutes

    15 minutes

    15 minutes

    30 minutes

    Welcome and Consortia Updates

    Indu Navar 

    Keynote : Person living with ALS

    Martha and Paul Beach will share with us the impact of ALS on family, and support and shared-decisions

    Grant Opportunities with the ALS Research Programs 

    Sarah N. Fontaine

    Will present the congressionally directed medical research programs, U.S. Army Medical Research and Development Command 

    EverythingALS Vision 2030 AI Research Hub

    Merit Cudkowicz and Ernest Fraenkel

    Vision: 2030:  a First-of-its-Kind AI Research Hub in ALS

    Panel: 'What It Takes'

    Michelle Crouthamel, Lyle Ostrow, Ernest Fraenkel, David Shulman and Sarah N. Fontaine

    "What It Takes": Making Digital Endpoints and Outcomes Foundational to Powered Studies in 2024 - Perspectives from Researchers, Clinicians, Industry and People with ALS

    Agenda

    Monday September 9th, 2024

         12:00 NOON - 1:30 PM ET   I   9:00 AM - 10:30 AM PT

    Welcome, Updates, and Announcements: EverythingALS App and the Consortia Portal

    We will share the latest updates and release of EverythingALS App and the Consortia portal, and how these tools are supporting the ALS community.

     

    Welcoming new consortia members Regeneron and Neuvivo.

    Indu Navar, Founder & CEO, EverythingALS

    Comments from the new Consortia members

     

    Ari Azhir, CEO & Founder, Neuvivo

    Matthew Wipperman, Associate Director, Digital Medicine, Regeneron

    15 minutes

    10 minutes

    15 minutes

    40 minutes

    05 minutes

    Keynote and Q&A:  "How to identify high performing Teams"

    ​John will delve into the essential characteristics and behaviors that define high performing teams by drawing upon real-world examples.

    John Hudacek, pALS

    Refinement of workstreams

    Potential projects, sign-ups, and process for setting meeting cadences

    EverythingALS team and Consortia

    Closing Remarks 

    Indu Navar

    THANK YOU - END OPEN SESSION

    CONSORTIA MEMBERS' BREAKOUT

    12:45 - 1:30 PM ET

    Agenda

    Participants

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