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We invite you to engage in an interactive nintely minute roundtable led by EverythingALS consortia of Pharma partners, sensor companies, neurologists, data scientists, regulators and patients to help advance the discovery and implementation of ALS digital biomarkers in clinical trials through our collaborative efforts.

 

Joining our participatory roundtable, you will be the first to learn about our latest study results on ALS digital biomarkers as well as have the opportunity to hear why major pharmaceutical companies have joined the consortium to partner in EverythingALS research, which will be expanded to include analyzing data from wearables and smartphones.

  

As always, we approach each roundtable to encourage out-of-the-box thinking, and to kick it off, we have an exciting agenda! Take a look below. 

This is an invite only event.

Hosts & Speakers 

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Agenda

Monday March 4th, 2024

     12:30 PM - 2 PM ET   I   9:30 AM - 11:00 AM PT

5 minutes

15 minutes

15 minutes

15 minutes

30 minutes

10 minutes

Welcome and Consortia Updates

Indu Navar 

Keynote : Person living with ALS

Martha and Paul Beach will share with us the impact of ALS on family, and support and shared-decisions

Grant Opportunities with the ALS Research Programs 

Sarah N. Fontaine

Will present the congressionally directed medical research programs, U.S. Army Medical Research and Development Command 

EverythingALS Vision 2030 AI Research Hub

Merit Cudkowicz and Ernest Fraenkel

Vision: 2030:  a First-of-its-Kind AI Research Hub in ALS

Panel: 'What It Takes'

Michelle Crouthamel, Lyle Ostrow, Ernest Fraenkel, David Shulman and Sarah N. Fontaine

"What It Takes": Making Digital Endpoints and Outcomes Foundational to Powered Studies in 2024 - Perspectives from Researchers, Clinicians, Industry and People with ALS

Closing Remarks 

White paper, Upcoming publications

Digital Biomarker Summit in Aug 2024

Agenda

Monday June 3rd, 2024

     12:30 PM - 2 PM ET   I   9:30 AM - 11:00 AM PT

Welcome, Updates, and Announcements

Welcomes and introductions, agenda and new members of the Consortia, Board, and partners network

Indu Navar

Keynote:

Hope and Action: A Journey through Life as Young Adult with ALS

Brooke Eby     

Speech & Listener Effort Paper: the Path to Speech Progression as a Clinically Meaningful Digital End Point

Dr. Lyle W. Ostrow and Dr.Ernest Fraenkel

     

Question & Answer

EverythingALS Consortia Paper: Advancing a Roadmap to DHTs in Care and Clinical Research

EverythingALS Industry Consortia Representatives

EverythingALS Industry Consortia Representatives

Breakouts by Work Stream

 

Final read-outs & next steps

 

Closing Remarks 

Digital Biomarker Summit in Aug 2024

Agenda
Speakers

Participants

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