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We invite you to engage in an interactive nintely minute roundtable led by EverythingALS consortia of Pharma partners, sensor companies, neurologists, data scientists, regulators and patients to help advance the discovery and implementation of ALS digital biomarkers in clinical trials through our collaborative efforts.

 

Joining our participatory roundtable, you will be the first to learn about our latest study results on ALS digital biomarkers as well as have the opportunity to hear why major pharmaceutical companies have joined the consortium to partner in EverythingALS research, which will be expanded to include analyzing data from wearables and smartphones.

  

As always, we approach each roundtable to encourage out-of-the-box thinking, and to kick it off, we have an exciting agenda! Take a look below.         

This is an invite only event.

Hosts & Speakers 

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        Agenda

        Monday March 4th, 2024

             12:30 PM - 2 PM ET   I   9:30 AM - 11:00 AM PT

        5 minutes

        15 minutes

        15 minutes

        15 minutes

        30 minutes

        Welcome and Consortia Updates

        Indu Navar 

        Keynote : Person living with ALS

        Martha and Paul Beach will share with us the impact of ALS on family, and support and shared-decisions

        Grant Opportunities with the ALS Research Programs 

        Sarah N. Fontaine

        Will present the congressionally directed medical research programs, U.S. Army Medical Research and Development Command 

        EverythingALS Vision 2030 AI Research Hub

        Merit Cudkowicz and Ernest Fraenkel

        Vision: 2030:  a First-of-its-Kind AI Research Hub in ALS

        Panel: 'What It Takes'

        Michelle Crouthamel, Lyle Ostrow, Ernest Fraenkel, David Shulman and Sarah N. Fontaine

        "What It Takes": Making Digital Endpoints and Outcomes Foundational to Powered Studies in 2024 - Perspectives from Researchers, Clinicians, Industry and People with ALS

        10 minutes

        Closing Remarks 

        White paper, Upcoming publications

        Digital Biomarker Summit in Aug 2024

        Agenda

        Monday June 3rd, 2024

             11:30 AM - 1:00 PM ET   I   8:30 AM - 10:00 AM PT

        Welcome, Updates, and Announcements

        Introductions, agenda and new members of the Consortia, Board, and partners network

        Welcome RAPA Therapeutics into the consortia 

        Indu Navar

        Keynote:

        Hope and Action: A Journey through Life as Young Adult with ALS

        Brooke Eby     

        Speech & Listener Effort: the Path to Speech Progression as a Clinically Meaningful Digital End Point. Publication and Beyond

        Dr. Lyle W. Ostrow and Dr. Ernest Fraenkel

        Question & Answer

        EverythingALS Consortia Joint Efforts: Advancing a Roadmap to DHTs in Care and Clinical Research

        David Shulman, Josh Coshman, Joel Schwartz and Henk Schuring

        Breakouts by Work Stream

        Final read-outs & next steps

        10 minutes

        15 minutes

        15 minutes

        25 minutes

        15 minutes

        10 minutes

        Closing Remarks 

        Digital Biomarker Summit in Aug 2024

        Agenda
        Speakers

        Participants

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